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    [–] Happy Birthday Lorne Michaels able2sv 14 points ago in LiveFromNewYork

    Happy birthday Cody’s mom!

    [–] I’m a 21 year old guy living in New York City with Spinal Muscular Atrophy, a neuromuscular disease that affects all muscles. AMA able2sv 3 points ago in AMA

    Growing up I was pretty naive and unaware of exactly how different I was, until probably late middle school/early high school.

    Those years were definitely the toughest, and the last couple months of high school I really turned it around and embraced it. I’ll never forget having the time of my life at prom and thinking, “Damn, I really could’ve been doing this all 4 years of high school”. Once college started I really took advantage of the opportunity to have a fresh start and create a better version of myself, and I did.

    I’d recommend to your brother that he try to do the same. Talk to him about his strengths, the things that make him a good friend, and the people he wishes he were more like. Chances are, the people he looks up to are not cool because they’re able-bodied, they’re cool because they’re good people. If he feels like he’s at his best self, making friends and finding some little things to be happy about will come much more easily.

    [–] I’m a 21 year old guy living in New York City with Spinal Muscular Atrophy, a neuromuscular disease that affects all muscles. AMA able2sv 2 points ago in AMA

    Straight up 2%, although I do drink a Chocolate Carnation’s Breakfast Essentials™ almost every day. Carnations if you’re reading this hmu plz and thank you

    [–] I’m a 21 year old guy living in New York City with Spinal Muscular Atrophy, a neuromuscular disease that affects all muscles. AMA able2sv 3 points ago in AMA

    Don’t get your hopes up. They have a tough schedule remaining, and I find it hard to believe they’ll finish better than 8-8. I think both the Eagles and Redskins are good bets for 9 or maybe even 10 wins, so barring a huge resurgence and winning streak I don’t foresee it happening.

    [–] I’m a 21 year old guy living in New York City with Spinal Muscular Atrophy, a neuromuscular disease that affects all muscles. AMA able2sv 1 points ago in AMA

    I’ve definitely noticed the lacking areas of accessibility as I’ve grown up, but I’m not too active in NYC Accessibility Advocacy. I’d like to be, but it’s just one of those things that I haven’t really spent any time and energy on yet.

    I’m not sure where the intersect will be, but I’m slowly moving my creative projects closer to my disability experience and I think that overlap could eventually work as advocacy, I’m just not quite sure how yet.

    [–] I’m a 21 year old guy living in New York City with Spinal Muscular Atrophy, a neuromuscular disease that affects all muscles. AMA able2sv 2 points ago in AMA

    I do actually. Video games and drawing are probably the most fatiguing activities that I can still do, but it certainly takes a little fun out of it. I like to drink coffee before I game as that little caffeine energy boost gives me that slight edge in reflexes and speed, and it makes things more competitive and fun.

    [–] I’m a 21 year old guy living in New York City with Spinal Muscular Atrophy, a neuromuscular disease that affects all muscles. AMA able2sv 4 points ago in AMA

    I love dogs, and I actually have a service dog. He is a brilliant Black Lab named Titan, and he’s almost 10 years old.

    Unfortunately the care I need is generally more of an aide/nurse, and since it would be quite a lot of responsibility and work to care for Titan at my apartment, we decided it was best he stayed back home in Long Island. He has a better life there too, lots of space to run (I live in a small studio apt here) and his doggo friend, our mini schnauzer, is there to hang out with him.

    That being said, he was a great help when I was living home and is such a smart dude. I’m very excited to see him on thanksgiving :)

    [–] I’m a 21 year old guy living in New York City with Spinal Muscular Atrophy, a neuromuscular disease that affects all muscles. AMA able2sv 1 points ago in AMA

    Yea, it’s a scary disease and can go south really quickly. Really fortunate for that little strength I still do have and for how functional it allows me to be.

    [–] I’m a 21 year old guy living in New York City with Spinal Muscular Atrophy, a neuromuscular disease that affects all muscles. AMA able2sv 2 points ago in AMA

    The standard version of this chair is about $20,000, and fortunately is covered my Medicaid. I did some upgrades to it to make it more comfortable and functional, which my family had to pay for out of pocket, and that was an extra $10,000. Certainly not an easy thing for us to buy, but I’ve been using this bad boy for 9 years so it’s been well worth that investment.

    It’s just about time for a new one soon, which sounds fun but is actually a terrible experience and I’m dreading it.

    [–] I’m a 21 year old guy living in New York City with Spinal Muscular Atrophy, a neuromuscular disease that affects all muscles. AMA able2sv 1 points ago in AMA

    First off, your complaints are totally valid and you’re allowed to express that. The severity of someone else’s sickness/disability/health doesn’t make your life any less hard, so it shouldn’t make your complaints any less reasonable.

    1. It really is. Do I feel shitty sometimes, or sad, or pessimistic? Absolutely. I don’t express that stuff as often because I find real merit in the “fake it ‘till you make it” thinking.

    I really do find pleasure in a lot of things, like watching some stand up, eating a nice meal, doing a favor for someone, etc. And I do those things when I need to - I treat my mental health just as seriously as I treat my physical health, if not even more-so. It took me years and years to find out what makes me happy and when I need that little boost, but I’ve found that living “contently” has only gotten easier as I’ve gotten older.

    1. I have to give a lot of credit to my family on that one. While I might’ve lost the genetic lottery, I was born into a life with FOUR incredibly supportive parents, access to a comfortable middle-class childhood, good healthcare, and great education and attention. Sadly most people with similar disabilities aren’t as fortunate in those areas.

    For those that are, a lot of them either go quickly uphill or downhill upon graduating high school. I had the bravery to dorm at college rather than commute, which was the best decision I ever made. From there I can take a tiny bit more credit for my achievements, and I certainly worked harder than most of my classmates. That said, the effort and hard work I’ve put in, and the risks I’ve taken, were only because I always had and always will have a safety net and support system in my family.

    [–] I’m a 21 year old guy living in New York City with Spinal Muscular Atrophy, a neuromuscular disease that affects all muscles. AMA able2sv 4 points ago in AMA

    Your friends might not vocalize it as much as you’d like, but I’m sure they appreciate you and what you do. It’s unusual to find friendships (especially group friends) without that someone who leads things.

    [–] I’m a 21 year old guy living in New York City with Spinal Muscular Atrophy, a neuromuscular disease that affects all muscles. AMA able2sv 3 points ago in AMA

    I think it’s something I’ve always accepted, but what was much harder for me was understanding how others perceive me.

    You go through phases of “everybody is staring at me” to “nobody notices me” and it’s really unsettling to bounce between those two points. The truth is somewhere in the middle, and my guess would be that Casey is still finding her place on that scale.

    I think if you can truly convince her that you don’t only accept her disability but sincerely enjoy her company, she may realize it’s not that big of a deal that she’s different in some ways.