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    monteverdea1

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    [–] In honor of CHD awareness in the month of February, here is my little one at 7 months old, 2 weeks post open heart surgery. monteverdea1 1 points ago in pics

    Hi there! It was definitely very hard and you are not being forward at all! I will be very honest with the dark side of this experience. When we were told of her diagnosis I took it as a death sentence for her and I isolated myself from my family and friends. I grew up catholic and I even became very angry with God. I still talked to God and prayed for strength and one day I had enough courage to immediately reach out to family, friends, and even mended little hearts. I needed to speak to other parents who have gone through this. My friends and family were amazing and I found the greatest support speaking to parents who have gone through what we went through. It gave us hope and at the same time we also had to be realistic about the possibility of losing her and those were the hard days. One of the greates advice I received was to be strong for her. Obvious right? But it was easier said than done. We tried very hard not to cry in front of her and breakdown in my husbands arms ar night AFTER she fell asleep. I was told that my fear can be transferred to her so we did all we can do to keep that from her. When it was surgery day, we had a clapping game in the prep room and I was choked up with tears. When the took her from my arms I broke down. I would constantly tell myself that I will see her again and I didn’t allow myself to think that she wouldn’t make it. I couldn’t bring myself to think like that. The hospital we were at gave us updates every 30min while she was in surgery and t lasted about 3-4 hours. After she got out of the surgery room I never left her side. I mentioned somewhere in the post that this experience, although it was very hard, i grew so much more closer to my family, husband and little girl and most importantly to God. That is what helped me through this.

    [–] In honor of CHD awareness in the month of February, here is my little one at 7 months old, 2 weeks post open heart surgery. monteverdea1 1 points ago in pics

    I am so sorry that you and your wife are going through this. Nothing prepares you for such devastating news when you hear that there is something wrong with your baby. When we were told about my daughters diagnosis, I initially took that as a death sentence. I didn’t know anybody that was going through this at the time and no one in my family had heart problems. What helped me through this was my faith in God, my support from friends and family, reaching out to organizations such as mended little hearts, asking LOTS of questions to doctors to the point where I would call them on a weekly basis, and taking care of myself. I’m not saying that that is what you need to do to deal with what you are going through as this is what worked for me. Find what works for you and your wife to deal with this, and know that sometimes things change. I have seen families who have had such devastating news and somehow “the hole closed.” Don’t give up and if you need someone to talk to feel free to message me.

    [–] In honor of CHD awareness in the month of February, here is my little one at 7 months old, 2 weeks post open heart surgery. monteverdea1 1 points ago in pics

    I believe so, it’s hard to tell with babies because they can only cry. And the crying can mean many things but post surgery, the Tylenol seemed to help manage the pain.

    [–] In honor of CHD awareness in the month of February, here is my little one at 7 months old, 2 weeks post open heart surgery. monteverdea1 1 points ago in pics

    No, nothing was detected when she was born. It was actually discovered when she was 4 months old at a hospital visit for a UTI. They noticed in her x-ray that her heart was enlarged and referred us to a cardiologist who gave us the diagnosis. The cardiologist told us that her hole was so big that she didn’t even have a heart murmur because the blood was freely passing through the hole. So there was no suspicion that there was something wrong until that day at the hospital. Come to think about it, today last year is when we were in the hospital and we were told about her enlarged heart and referred to the cardiologist. Wow

    [–] In honor of CHD awareness in the month of February, here is my little one at 7 months old, 2 weeks post open heart surgery. monteverdea1 2 points ago in pics

    Oh wow how interesting! That’s been a concern for me as a parent: if this operation and heart condition has any long term affects with her cognitive and adaptive functioning. Looking forward to the outcome!

    [–] In honor of CHD awareness in the month of February, here is my little one at 7 months old, 2 weeks post open heart surgery. monteverdea1 2 points ago in pics

    It was definitely very very difficult and it helped us to grow so much more closer to one another as a family and a stronger faith in God and our doctors/nurses.